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Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit

Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit

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Product Details
Author:
Wylie Burke
Publisher:
OUP Us
Publication Date:
Sep 15, 2011
Number of pages:
224 pages
Binding:
Hardback or Cased Book
ISBN-10:
0195390385
ISBN-13:
9780195390384

Overview

This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.


  • | Author: Wylie Burke
  • | Publisher: OUP Us
  • | Publication Date: Sep 15, 2011
  • | Number of Pages: 224 pages
  • | Binding: Hardback or Cased Book
  • | ISBN-10: 0195390385
  • | ISBN-13: 9780195390384

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